It’s All About Resources
Every March, Brain Injury Awareness Month, led by the Brain Injury Association of America, kicks into high gear to educate the public on this major public health crisis. From concussion and mild traumatic brain injury (mTBI) to severe brain injury and stroke; all of these conditions have a far-reaching impact. An impact on the individual who has suffered the injury, families and caregivers, communities, and our ever-burdened health care system.
The greatest challenge for those affected by these unfortunate, and often preventable, events is access to resources. Educational and treatment resources beyond the initial stage of injury is often hard to come by and folks are left to their own devices to put the pieces together for the most productive life possible. This, while being told by so many (including their doctors and family) that there is not much hope for further recovery.
Where to Look For Answers
What follows are links to a host of resources exploring many aspects of brain injury. Content related to understanding why so many continue to experience the symptoms they do. Some resources will explain symptoms in detail and why they occur, and others will look into what tests you can have done to determine what path of treatment is best for you. Most importantly, these resources demonstrate a clear message of hope for so many to get beyond their daily struggles. Be sure to watch the videos of those who have done just that!
We understand that those who have injured their brain digest information in different ways, therefore the content is made available in written (blog), audio (podcast), and video formats. Please enjoy, learn something, act on something; and pass the Brain Injury Awareness word on to others who can benefit and renew their hope.
Brain Injury Awareness Links
As the Old Saying Goes…
…If I had a dime for every time someone with concussion said “my doctor doesn’t listen to me”. Nearly every day in clinical practice patients report to me one way or another this very real concern. While this is true across all areas of specialty at our center, it is far more prevalent in those suffering the effects of concussion and post-concussion syndrome.
There are several theories as to why many doctors don’t take the time to listen. These can be explored at length with a simple internet search. Here, I will briefly explore some of these more accepted views and, more importantly, what I have come to see is the real truth behind why so many are being ignored, and in many cases dismissed, by their ‘trusted’ health care providers.
The Usual Suspects
- Time. Most primary care physicians are pressured by the demands of heavy patient loads and declining insurance reimbursements. That leaves you as the patient at the mercy of a provider that may only give you one minute or less to voice your concerns; which for those of you with concussion are often too many to list.
- Distraction. Electronic records, insurance forms, mobile devices, and excessive patient volume can cause doctors to get caught up in things that are not right in front of them. That is you, the patient. If a doctor is distracted, they will not do a great job at listening.
- Bias. It has been established that many doctors will spend less time with individuals based on race, gender, and other factors such as socio-economic status. Also, patients that come in with recurring complaints are more likely to be dismissed or ignored.
While I believe these are accurate (although unacceptable) reasons for many being short-changed when it comes to their health care provider’s attention; there are more specific reasons doctors don’t listen when it comes to the laundry list of life struggles that can accompany concussion and post-concussion syndrome.
The Real Story Doctors Don’t Listen to Those With Concussion
- Ignorance. This may seem like a harsh term to many (particularly the doctors), although it simply means that most primary care providers lack the knowledge and information necessary to properly question and screen for these types of conditions.
- Invisible. Concussions are not seen on CT scans or found in blood work. They are silent injuries that result in functional problems with balance, vision, cognitive abilities, and more. Conventional medical approaches are not well suited for these conditions; therefore, doctors are less inclined to listen to problems they cannot treat.
- Overwhelming. The number of symptoms and conditions that can result from a hit to the head are staggering (we’ve compiled a list of over 50!). Most doctors when presented with 5, 10, or more complaints may focus only on 1 or 2 as this is what they are accustomed to.
- Unknown. Even with all the attention given to concussion over the past several years in sports, the media, and movies, this is still uncharted territory for most providers in mainstream medicine. This is also true for many of the doctors those with concussion are being referred to.
So, What’s the Answer?
The internet is full of strategies to get your provider to listen better. This, however, is not the focus of this article. And, it will not serve you well to try and get those that don’t understand concussion to listen to you! What you need to do is seek out the services of a qualified functional neurologist who is well versed in the art of listening. And, who understands the multitude of symptoms those with concussion and post-concussion syndrome experience. Only then will you be able to get answers as to what the best method of treatment will be for you. Concussions are real, and so are the symptoms and solutions!
For more information please call us at 828.708.5274, or visit any of the following resources: